Good Eating, No Sleeping, and a Hair Cut

It was a wonderful day for feeding Shayna as she ate nearly everything put in front of her.  Plus I finally put butter in her banana, breast milk oatmeal so it's just jam packed with calories and she still finished the whole dish.  Since she ate so well, she decided she must give me trouble on another front: napping.  She only slept for 1/2hr in the afternoon, fortunately I slept then too otherwise we wouldn't have survived.  During one of our up periods when I wasn't trying to sleep her, I gave her a haircut AND she looks better than when I started (even Nahum thinks so).  It was just a little trim to get rid of the wild bush look.

Here she is enjoying some avocado from Jan 27.

We're still going home on the 14th!! even though her EBV-PCR (the extremely sensitive test they run to detect EBV before it has a chance to do anything) is now at the bottom of tier III (in a four tier system) so they've adjusted her prednisone (anti-rejection steroid) and prograf (main anti-rejection drug, on for life) again.

On her amazing feats from, she can now easily go from her belly to sitting.  I watched her go onto her belly for a toy, tuck her legs under her and push straight back up like she'd been doing it for ages.  It amazes how much stronger she gets each day.  I don't think she'll be walking for a couple months at least because she's still so wobbly but I see her doing some real crawling soon.  There are some new youtube videos on my mrsarava channel showing her current inch worm technique.

One of my favorite times of the day is just after dinner and before bed when Nahum and Shayna play on the floor.  It brings joy to my heart to hear them laughing and talking together.  That's what they're doing right now.

Immunosuppression Does Its Job

Shayna's liver numbers are going down again but she's also got a cold.  We'll be on the increased prednisone until next Thursday (2 weeks) then start the weaning process (7.5mg @ 1wk, 5mg @ 4wks, 2.5 @ 4wks then hopefully none).  I don't know how the cold will play out.  So far she's in good spirits with a runny/stuffy nose.  She was never sick before transplant except the little cold that postponed the original.  All she did then was sleep more and cry less (sore throat).

We're still going home on the 14th!!  We've got our last Dr apt next Thursday then our friend Yael will come to get us.

Shayna still slithers toward desired objects (forehead to floor while her legs push) but she's getting more confident about it.  She finally figured out the whole walking by holding hands thing but is still more enamored with just the standing in place.  She helped me do laundry and clean the kitchen today.

I finally started sorting mail from the last 2 months.  I'd kept up with the bills but everything else was just piling up.  Yay for EOBs.  My favorite was the EOB for $445,545.75 that had a negotiated rate of $183,242.63.  You gotta wonder about that difference.  Most EOBs are a few hundred to a few thousand.  Thank you Virginia tax payers for our wonderful insurance.  I'm also beginning my collection of tax documents.