Cool Stuff on the Side

Check out the side bar.  There are links to one family's blogs about their life with Biliary Atresia.  Their son was transplanted Dec 2008 after 3 years on the waitlist in Atlanta.  So if you want to read about what we'll be going through soon start in Dec 2008.  They did excellent coverage of their lives and their son Ian is about as close to a best-case-senario as a person can get.

If you go down a little farther, you'll find videos of our princess.  If they show weird pictures just refresh so they show pictures of her.  (I think the blog must be pulling from a channel with a similar name.)

Shayna continues to make great strides in physical therapy.  She worked so hard this morning she slept from 10-12, 1-3, and 5-6.  She's getting so much stronger it's amazes me.  I don't think she'll crawl before tranplant but she is starting to catch up with her peers a bit with her core strength.  This allows her to reach much farther for toys and balance better in a bumpy stroller ride.  I guess she decided to be like Aba and train for her surgery as if it were a marathon.  She also put her foot in her mouth for the first time today.  That ginormous belly had been in the way before so she didn't even try before.  It's been a lot of fun reconnecting with the normal development milestones.

Nahum just put Shayna to bed so it's time to go relax with him and watch some more of the movie we've been working on for the last couple days.

We Still Don't Know

So I'm sure plenty of you are waiting.  Unfortunately, so are we.  Everything's been cleared except for Nahum's cholesterol levels, which is a concern for his health not Shayna.  It's also hereditary and seems to have no ill effect on the rest of his families' health so we're hopeful that whatever the results are of tomorrow's blood test, he'll be cleared for surgery.  Since we're so close, we do have a reserved date of Thursday, November 19.  Shayna's holding her own quite well too.  She hasn't lost any weight since all the water she shed, is getting stronger and more sure of herself, and her lab results (from blood draw Mondays) continue to hold steady. 

I've got some new pictures up on fb at October 2009.