New Date: Dec 1st

After much back-and-forth between doctors, coordinators, and us, we have a new LRD Transplant date of Dec. 1st.  (Right smack in the middle of expensive plane ticket time.)  Nahum's coordinator tried to get us to agree to the 10th so I called Shayna's surgeon's cell (yes, a doctor gave us his cell number) to find out exactly why we had to wait so long.  Just a miscomunication which we were able to straighten that out in an hour.

It's amazing how many big-wigs have to be on the same page for something to get on the board.  There's Nahum's surgeon Dr. Humar and Shayna's 2 surgeons Dr. (Kyle) Soltys and Dr. Mazareirgos.  There's the 2 nurse coordinators Nahum's Mimi and Shayna's Kim and the infectious disease expert Dr. Green.  There's Shayna's local GI doc Dr. Hart, Pittsburgh GI doc Dr. Shneider, and new pediatrician Dr. Berry whom we saw yesterday to determine Shayna's current health.  And those are just the people that I get to have contact with.  Then there's all the support staff for each person and facility plus the 2 ORs we'll be using.  Frankly, I'm astonished we got one date canceled and another one scheduled in less than 24 hours of each other.  It took a lot of stress out of the day to have a new day to focus on again.

I just posted some November pics on fb.

 

Cold = No Transplant (Updated)

I just wanted to let everyone know that Shayna has a cold.  As such, they can't do the transplant Thursday.  We'll reschedule for a week or two from now.  We spent all morning with her new pediatrician at his new B-burg office.  They took a few snot samples for cultures.  I talked a little with the Pittsburgh folks.  They'll let us know when they have some date options but we're looking at the beginning of December sometime.  I will post the new date when we know.

While we saw this coming with her cold symptoms starting Friday morning, it was still a hard morning to have it all confirmed.  We've got a lot of stuff up in Pittsburgh thanks to our friend's mother-in-law that waiting for our arrival and an apartment we've got to sign the lease on tomorrow if we want keep it.  We're set to go at any moment now we just have to hurry up and wait.