Shayna's liver numbers went slightly down, which is good but not good enough to send us home. We saw Dr. Bond today who said that it can take 2 weeks for signs of rejection to begin to show. It's only been 1 week since we went cold turkey on her steroids (something usually weaned over a 2-3 month period) and halved her prograf so the rejection could easily begin to manifest itself next week. If we went home and that happened, we'd be sent back to Pittsburgh so the safest thing is to stay put. We'll have a full lab workup Monday followed by clinic then the 2 day wait for EBV results. In the mean time, we'll just keep our fingers crossed that her body has missed the fact it still has a foreign organ operating inside it and EBV stays low.
Our amazing landlords Evan and Mark have extended our lease yet again to take us through March 8th (taking a conscious business hit with that decision). Nahum's big proposal is due on the 26th so we wouldn't be heading home in the middle of the week either way and with all the labwork unknowns we'd just rather play it safe and give ourselves some extra time to play with.
There are 2 reasons I'm excited about staying until March 8th. The first is I have a new chance to take Shayna to the Aquarium now that I can drive again (Yay for driving!) and, after the proposal is submitted, we can take an early afternoon and go to one of the museums. (Right now Nahum is working 7 days a week.) The second is we're not moving on Shayna's first birthday so I can take the time to make a cake and plan a little party. I've been reading about cake making in Joy of Cooking and am stoked to be able to make her her 1st birthday cake on her 1st birthday. It's right after the proposal is due so Nahum will actually take the whole day off to be with us too.
Thank you Mark and Evan for providing such a wonderful home away from home. Thank you Yael for keeping your weekend open for us in case we could have come home. And thanks to everyone else who has been sending good thoughts and words our way. We continue to be amazed by and grateful for all the wonderful people that surround us during this difficult journey.
Thank you, that was good to read. Have you got your phone yet, Patricia? I sent you valentines in Blacksburg, hopefully they will get forwarded to you. Loads of love, Carole
ReplyDeleteWow, making her a cake?! Very impressive :) It's great that you'll be able to see some of the sights around town, like museums and stuff. Might as well make the most of it.
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