Her liver numbers are back down in the normal, but high, range. If that were the only thing we were watching, we could go home; however, we have to wait for the EBV results to come back today or tomorrow before we're officially cleared to leave. We had a prograf dose change so I have to do labs this Thursday. Her level went from 3.2 to 8.2 on the same dose but I don't think I changed how I gave it (sprinkling powder vs. whole capsule changes the amount of prograf absorbed so it's very important to administer it in a consistent manner). Now I have to alternate between 0.5mg and 1.0mg each morning so I made a calendar to keep it straight. Her blood pressure remains down (100-110 over 55-60, high for a baby but great for her) so I'm down to only 3 daily meds with 4 total administrations and vitamin D plus bactrim Mon/Wed/Fri.
She can military crawl forward but is still intimidated by distances over 1.5 feet so yesterday I laid out rummikub tiles like bread crumbs to get her to go 3'. We'll do some more today as I want her to crawl before she walks for the muscle development and coordination crawling requires. She loves to cruise on the couch. She's still pretty slow about it and has trouble getting her left foot to coordinate with her right (the right one just gets too excited so won't stay still), but she'll go back and forth for hours if we let her. She's much more adept at getting Cheerios into her mouth. She has lots of carpet picnic snacks since the high chair we have is just a seat without a tray and sits about 2" lower than the table top. Bamba are now a thing of the past but gold fish are great. She still loves halved blueberries, pealed grapes, avocado, and flavored yogurts with cheerios. Noodles continue to be rejected much to my dismay. Most of her nutrition still comes from nursing. She continues to gain weight so that seems fine for now. She has more word like noises and I think can say much more than she lets on as words escape her mouth once but I won't hear them again after that. She's back on 2 naps a day too. My guess is the prednisone (steroids) finally wore out of her system so it can act in its more natural state.
Good news on the electronic from for me. My cell phone was replaced as it was still under warranty; though, I still hate it just as much. I took my computer to PC Doctor (2 blocks from our place and run by an Orthodox Jew). He's installing a new video driver today for $85 and says that's what was causing me all the problems and the reason it quite powering up. It'll be nice to have it back, and not to have to figure out where to scrape the money from to get a new one (like the one I'd like to have). We'll go out for a walk with an umbrella to get it (and get me some exercise) this afternoon.
Right now we're shooting for home on March 8th.
That's great news!
ReplyDeleteMy girls were the same way w/r/t nutrition at her age. The "real food" was mostly for entertainment value and fine motor skills, the lion's share of their nutrition came from nursing.
I'm so impressed you've been able to move back to nursing after taking a hiatus--that takes real work and dedication!
The only thing that springs to mind that they were eating at her age that you didn't list is apple. I'd dice it into cheerio-sized pieces and then steam in the microwave so it was soft enough to gum down. Not exactly a nutritional powerhouse, but something different and less work than pealing a grape. :D
Enjoyed the mental picture of the excited right foot not staying put and cooperating with the other appendages. And great news about your laptop. Too bad you'll have to say goodbye to such an excellent pc repair shop find on the return to Blacksburgh.
ReplyDeleteMichael O