Tuesday, November 17, 2009

New Date: Dec 1st

After much back-and-forth between doctors, coordinators, and us, we have a new LRD Transplant date of Dec. 1st.  (Right smack in the middle of expensive plane ticket time.)  Nahum's coordinator tried to get us to agree to the 10th so I called Shayna's surgeon's cell (yes, a doctor gave us his cell number) to find out exactly why we had to wait so long.  Just a miscomunication which we were able to straighten that out in an hour.

It's amazing how many big-wigs have to be on the same page for something to get on the board.  There's Nahum's surgeon Dr. Humar and Shayna's 2 surgeons Dr. (Kyle) Soltys and Dr. Mazareirgos.  There's the 2 nurse coordinators Nahum's Mimi and Shayna's Kim and the infectious disease expert Dr. Green.  There's Shayna's local GI doc Dr. Hart, Pittsburgh GI doc Dr. Shneider, and new pediatrician Dr. Berry whom we saw yesterday to determine Shayna's current health.  And those are just the people that I get to have contact with.  Then there's all the support staff for each person and facility plus the 2 ORs we'll be using.  Frankly, I'm astonished we got one date canceled and another one scheduled in less than 24 hours of each other.  It took a lot of stress out of the day to have a new day to focus on again.

I just posted some November pics on fb.

 



Posted by at

10 comments:

  1. David and Vickie OrendorffNovember 17, 2009 at 7:43 PM

    Thank God it moved quickly. I (David) had a long conversation with Michael yesterday and the delay sounded difficult for everyone. We are ready to move on with you. Shalom, David and Vickie

    ReplyDelete
  2. AnonymousNovember 17, 2009 at 8:44 PM

    It is always worthwhile to have informed family members who make their needs heard. Great job to you Patricia and Nahum to move this along. It is great for you to have a firm date to work with again.
    Best,
    Joe and Kathy

    ReplyDelete
  3. AnonymousNovember 17, 2009 at 10:19 PM

    Dr. Berry used to be at the NRV Pediatrics and he was one of my favorites! Glad they have a new date and wishing you all the very best. -Leslie

    ReplyDelete
  4. AnonymousNovember 17, 2009 at 11:09 PM

    Thanks for the update. Thanks for all the time to put all the doctors' info up. Wow, it is amazing what has to happen behind the scenes. Yes, it is good to have another date to focus on. Lotza love, Carole

    ReplyDelete
  5. AnonymousNovember 17, 2009 at 11:11 PM

    ps I enjoyed the new fb photos too. What a treat, especially the comments. Carole

    ReplyDelete
  6. Michael ONovember 18, 2009 at 9:48 AM

    Yes, it was quite a surprise to get the call. But a very good surprise to be able to start moving forward again (though with that nasty additional wallet bite).

    ReplyDelete
  7. Alycia and DanNovember 18, 2009 at 3:53 PM

    Heartening that things *can* move quickly! Dang the cold season - we're sending "healthy, healthy, healthy, healthy, healthy, healthy..." thoughts your way. Thanks for the new pix - I love seeing Shayna bundled in the flower sweater and an overall favorite is the windblown sunset shot.

    ReplyDelete
  8. AnonymousNovember 22, 2009 at 2:05 PM

    Glad you could get it rescheduled so quick. Thinking of you guys and sending good thoughts your way. Thanks for the pics - she's so cute in that purple outfit.

    ReplyDelete
  9. AnonymousNovember 22, 2009 at 2:06 PM

    forgot to sign my note - that last one is from Peter

    ReplyDelete
  10. AnonymousNovember 25, 2009 at 11:08 AM

    So glad you were able to reschedule - I think dec 1 is a very good day - the start of a new season... Keeping my fingers crossed for all of you and thinking of you often.

    Love and take care
    Jane

    ReplyDelete

Subscribe to: Post Comments (Atom)