Friday, December 4, 2009

Day 3

Not a whole lot to report today. Shayna's liver numbers keep coming down along with her bilirubin and coagulation/clotting times. This all means that her new liver is functioning well. She's well out of the woods for acute rejection, which is basically a instantaneous, or near instantaneous, rejection of the new organ. We are firmly in the battle we will fight for the rest of her life of long term rejection.

So I was a little misinformed this morning. There is still some fluid in her right lung as of this morning but it looked much better than yesterday (I saw the xrays). She's still puffy so they've added a new diuretic (I'm learning all the new drugs' names but it's a slow steady process and I don't remember that one just yet) and more albumin.
(1pm...3pm)
I just watched her get her dressing changed again. The doc's are confident they'll be able to close her fully Sunday or Monday when they go to do that.

Michael and I visited Nahum around noon today. He tires easily but is doing awesome otherwise. He's probably had all his iv's removed by this time so is totally off the morphine button. After that he got to take his first shower, for which Hilary was grateful. He can move adeptly from bed to chair and back again and even cross his legs. It was exactly a week ago he did his last 90 minute run. Today he took his first walk for about 300' and declared it was just as difficult as that run. His doctors are pleased with his progress and say much of it is due to his getting into good shape before hand. What a trouper.

I continue to enjoy home cooked meals by Michael. He brought his favorite cookbook with him and has been picking meals out for us. He and Melinda do all the shopping and chopping together then visit me with yummy food that also makes my body feel good when I eat it. I don't know what we'll do when Melinda leaves, besides cry.  She's on duty as guardian ad litem for some time in Dec plus she's got some court dates.

I'm enjoying a quite evening now with my angel.  She's got her blue flower hat on again.  I'll take a picture for tomorrow.

4 comments:

  1. Thank you for posting all good news! Keep it up :) Love, Maja

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  2. Great news, Patricia! I took a peek at those pics, too. My goodness, what an incredible little person your daughter is ... your husband's not too bad either ... and did I mention that you are my hero? Sending big hugs to all of you from B'burg Xoxo Jenny et al.

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  3. Take good care , Patricia - so glad that so far so good (not to jinx anything ... but at least so far ...). You all are amazing!

    Love
    Jane

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  4. Good to hear things are looking good for Shayna and Nahum. You are surrounded by good people, and we hope it continues to be this way all throughout. Thank you for taking the time out to blog. Stroke Shayna's hair for me and Sere.

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